flea bites and rash all over the torso
The saga of tm's questionable health continues.
Tests came back positive for Bartonella.
Due to my
No one else has been effected by the bacteria. Just me.
Just me because I was the one trying to build myself up after a year dealing with Brucella only to then be given the gift of COVID (thanks to SOME ONE) and while trying to recover from that, Bartonella took the opportunity to walk right on into my system. I fought it valiantly for two months. By April, I felt almost the way I did when I had Brucellosis. I saw a doctor. I traveled to New Jersey/NYC keeping myself going with herbs.
And then the fun really began!
As soon as I started taking antibiotics, the ever delightful Jarisch-Herxheimer Reaction took center stage. But no one warned me about it so I had to do my best to hold my shit together. My best guess what that I was having a serious allergic reaction. I didn't quite think I was dying at the time, but I didn't know how far this reaction would escalate.
My lips and face went numb, my throat would tighten up, I lost feeling in... almost all the left side of my body. There were (still are) pin and needles and pen knife stabbing sensations all over at random at every hour; like I fell into a cactus patch. Aching. Joint pain. Heel pain. Head pain. Muscle pain. Gland pain. Tooth Pain. Bone pain. Muscle spasms. Restless leg. It's a whole shopping list of sensual delights! Absolutely nothing to be alarmed about here.
I'm glad I waited until after I returned from New Jersey/NYC to start any hard treatment because of all this nonsense.
I found myself in this position of being scared to stop taking antibiotics and being scared to take them. If you stop taking them the bacterial regrowth is crazy and there is that pesky matter of resistance. And at that point, if I kept antibiotics I didn't know if I was utterly destroying my peripheral nervous system or having a reaction that could eventually become life threatening. Or both! Why not both?!
I consulted the internet, as I could. Which is the worst. You have to keep making sure you aren't reading about some other half-way related topic. Because all this other stuff keeps showing in searches up when you never ask for it. And most of the time my head hasn't been very clear so I would get confused and frustrated. All advice there ultimately recommends going to see a professional anyway so...
I went back to the doc that gave me the antibitoics and was told that if I gained weight I would not feel the negative effects so badly.
And I was like- 'Wow, you really don't know what is happening here either. Great.'
(Weight has nothing to do with herxing. I seriously doubt all the people out there suffering the reaction are lightweights. Just because I am underweight according to cookie cutter medical book standards doesn't mean that is a negative factor. And being urged to put on 10+ extra pounds ASAP feels extremely aggressive when you have IBS and no big appetite- because you are, well, SICK and depressed.)
So I had to keep looking online for experiences others have had. From those I've been able to calm down mentally and be confident in taking the antibiotics. I still have very, very uncomfortable moments, but nothing as bad as it was at the beginning. I don't know how long I will be herxing- it could go on for weeks, but at least now I am pretty sure that is what is going on.
And if you have some three day juice cleans for "mold" and are like, 'oh, I have a little headache and I feel a bit tired,' let me inform you that you are not- you are f*ing NOT herxing. Don't insult those of us who've actually gone through hell.
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